No good deed goes unpunished

Today was a productive day. After church we fixed lunch together then watched a baseball game on TV. When that was over I reminded the kids they needed to mow the lawn. It is still new enough for them they enjoy it. I’ll take it while I can.

Before they were finished Marty started getting tired and Bella had to finish without him. I think partly because he is still fighting his cough and partly because juvenile arthritis just wears him out. After his shower he took a nap. Even then he was dragging the rest of the evening.

While I was doing laundry, I had both kids spend some time on their make-up homework, but Marty was stressing about how much he had to do. I think his weekly injection of methotrexate, a chemotherapy drug, messes with him mentally. He gets it on Saturday. I know it gives him a headache even before I finish pushing it in his arm.

Before bed he asked me if I had given him his daily injection of Kineret. I reminded him that today I had almost forgotten to move it from the pre filled syringe to one with a smaller needle. He said he just didn’t feel like he had had the medicine. If he feels like that an hour after his shot, I wonder how he will feel tomorrow.

I reminded him to make sure he has Tylenol in his backpack. He can take it when his regular pain medicine, naproxen, isn’t quite enough. I am glad the middle school lets kids carry meds with a note from a parent.

I hope mowing even half the lawn doesn’t prove to be too much for him physically. I think it’s good for him mentally.


About juvenilearthritis

A single mom raising a son with juvenile arthritis and a daughter with a big heart.
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