I just read this post in a group I am in (the name was changed, of course):
“…there is a likelihood that because of Stevie having JRA so young and all of the medications used to control it, that as he gets older, he can have serious complications like kidney disease and lung disease and that it’s kind of a catch 22 because we think of controlling the disease now and not so much on long term side effects because this is all they know right now and more research is needed.”
I don’t know about you, but I think it really stinks that a parent has to choose between controlling pain, inflammation, and joint damage in their child now, and the possible long-term side effects of being on medication. If the disease isn’t controlled, they could become disabled, blind, or even die from complications of juvenile arthritis. You’re damned if you do and damned if you don’t.
Of course, all this makes me wonder how many more hurdles Marty will face as he grows older and continues to struggle with an immune system that has decided to attack his body. We need to support research to find a cure for this evil disease.
Life just isn’t fair, especially to these kids with JA.