T-minus 5 days

Marty finally admitted today he is scared about his surgery. It helped when he found out that there is a person whose sole duty is to make sure he doesn’t wake up. He is excited about being loopy from the anesthesia but nervous about the unknown.

I am more nervous about what I DO know. I know he is more likely to have complications or infection. I know it may take him longer than most kids to heal. I know this is a complication of his juvenile arthritis. I know he has to have extra steroids and antibiotics to help his messed up immune system.

I also know he is one of the bravest people I know. Who else can take a painful injection every night and joke about it with his younger sister in the middle of it? Tonight he even made up a song about how much it hurt–as it was going in.

He lives with pain every day and doesn’t complain until it gets so bad he just can’t push through it. He, and some 299,999 other kids like him in this country, are my heroes.


About juvenilearthritis

A single mom raising a son with juvenile arthritis and a daughter with a big heart.
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