A note of thanks


It’s been a roller coaster this past week with Marty’s symptoms. He has had good days and bad, mostly related to how much Enbrel is actually in his system. We had family in town for most of the last two weeks, which is a mixed blessing. It was great to have mom here for a week, and my sister Marie for a few days, but being out of your routine is always stressful. Add the ups and downs of the medicine change, four doctor appointments, and computer problems at work, and I am ready for a 3-day weekend.

Early indications are the Enbrel is going to work. Marty feels better each time he gets an injection, and doesn’t get as bad in-between. His systemic symptoms have stayed away and he is getting more active with each shot. Bella has given him his last two injections; it appears I am out of a job.

On a related note, it has been heavenly being free from the Kineret injections. The extra time right now is taken up with his extra physical needs, but I expect those to ease up as the Enbrel builds up in his system.

I would like to thank my parents for financial and emotional support, my mom for helping out for a week, Marie for some de-stressing chats, my online JA friends for information, and especially Bella for being so patient and helpful while the focus has been on Marty. I would like to, but I can’t since I they don’t know about my blog. I’ve thought about telling some family and my closest friends, and I did actually tell one other JA mom. I’m just afraid if I tell people that actually know me I won’t feel free to speak my mind behind the security of relative anonymity, and that would defeat the purpose of the pseudonym.

If you do happen to recognize me behind the mask, consider yourself thanked and greatly appreciated.

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About juvenilearthritis

A single mom raising a son with juvenile arthritis and a daughter with a big heart.
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