Author Archives: juvenilearthritis

About juvenilearthritis

A single mom raising a son with juvenile arthritis and a daughter with a big heart.

Don’t mess with mama bear

A friend posted recently about an email she received. Apparently the sender was questioning whether my friend’s child was truly sick, while at the same time offering advice on how to treat this “imagined” illness. Charlotte’s can of whoop a** … Continue reading

Posted in Uncategorized | Tagged , , , , , , , | 1 Comment

I’m not Wonder Woman after all

Last week was crazy busy. Seems like I had something on my calendar for about 12 days straight. Until yesterday. I crashed yesterday. I didn’t sleep well and did actually have some stomach issues yesterday morning, so I contacted my … Continue reading

Posted in Uncategorized | Tagged , , , , , , | Leave a comment

My own private circus

I am in the middle of two very busy weeks. Both kids saw Dr F on Monday. Bella got her chicken pox vaccine and Marty had his sports physical for ::gulp:: high school baseball. Tuesday was Marty’s infusion, yesterday Bella … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , | 1 Comment

Who is the strong one now?

I am sitting in the infusion room while Marty sleeps. The Actemra is going in, so we are less than 1 1/2 hours from being finished. We have already been through the questions (lots more than 20), nurse has done … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , | 6 Comments

Selfish or just trying to be normal?

Marty told me today he no longer wants to be involved with arthritis advocacy. He said he wants to be able to forget about it. I guess he means besides the shots, pills, doctor appointments, infusions and blood draws. I … Continue reading

Posted in Uncategorized | Tagged , , , , , , | 3 Comments

Arthritis 101

I was reminded today that I am still unfamiliar with several of the 100+ types of illnesses under the arthritis umbrella.  This makes me think that I’m probably not the only one. If you are new to the world of … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Is your life going according to plan?

Four years ago, I would have never expected to be where I am today.  I had a son who played three sports, all well, and a daughter who was a dancer and cheerleader.  Marty was instantly successful at any sport he … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment