Tag Archives: Enbrel

Hello Remicade

Monday was the first Remicade infusion.  Marty woke up nauseous, and we decided it was just nerves.  Petting TP, our dog, helped him calm down.  At the infusion center, the nurse that started his IV and drew blood for labs … Continue reading

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Things kids shouldn’t have to worry about

We saw the rheumatologist today and decided that Marty will start Remicade next week. Personally I wonder if they are being a little too cautious not letting him start on Friday, but I guess the doctor knows better than I … Continue reading

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Waiting for life to change

<cue Jeopardy music> Waiting for Tuesday when we go to the rheumatologist.  We have all agreed that going back to Kineret isn’t the thing to do, but I have no idea what they will suggest.  I can think of 4 … Continue reading

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Time for Plan C

Marty goes to the rheumatologist on Tuesday.  Tuesday, as in after both kids are scheduled to go to a major league baseball game with their dad on Monday.  The doctor doesn’t want Marty to have any more Enbrel, but if … Continue reading

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No hope for me, thanks

We found out for sure today that the Enbrel isn’t working for Marty. Major downer for sure, but the worst thing I heard today hasn’t even hit home yet. Before I even had the chance to give him the bad … Continue reading

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Father knows best

My mom’s family is having a reunion next week. I knew for several weeks I probably couldn’t go, but Friday a possibility opened up that almost allowed me to make it. Now I know that God was keeping me home … Continue reading

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All Day, Every Day

OK, so I mentioned earlier that Marty thinks I’m obsessed with juvenile arthritis.  Maybe he’s right.  I have this blog, my twitter account (JA_mom), my facebook JA friends group (under my real name), and lots of facebook friends who are … Continue reading

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A note of thanks

It’s been a roller coaster this past week with Marty’s symptoms. He has had good days and bad, mostly related to how much Enbrel is actually in his system. We had family in town for most of the last two … Continue reading

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Scary stuff

I just read half (only half) of the patient insert that came with the Enbrel that Marty is scheduled to start on Wednesday. It is scary stuff. There were so many warnings about lymphoma, tuberculosis, viral infections, heart and lung … Continue reading

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I hope his heart stays healthy…

Marty has his med change next week and the nerves are starting to set in. Not that I don’t trust the doctors or modern medicine, I just remember what happened when he first started the Kineret and then didn’t have … Continue reading

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