Tag Archives: pain

Who is the strong one now?

I am sitting in the infusion room while Marty sleeps. The Actemra is going in, so we are less than 1 1/2 hours from being finished. We have already been through the questions (lots more than 20), nurse has done … Continue reading

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Is your life going according to plan?

Four years ago, I would have never expected to be where I am today.  I had a son who played three sports, all well, and a daughter who was a dancer and cheerleader.  Marty was instantly successful at any sport he … Continue reading

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He forgot his meds…

Marty forgot his meds this morning and didn’t realize it until it was time to take his evening pills.  He was thrilled that he didn’t even miss them. This is HUGE! Personally, I wanted to get on the phone and … Continue reading

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I’d just like to add…

I recently asked my group of Juvenile Arthritis moms what they would like the rest of the world to know. Here are a few replies: “Don’t give my child any meds if they’re at your house. That should go without … Continue reading

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Thankful for little things

I was shocked, as was all of America, by the tragic events last week in Aurora, Colorado. While I can’t pretend to understand how it is to be touched by such senseless violence, it does cause me to stop and … Continue reading

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Overheard…

Following are a few posts in my JA parents’ board on Facebook (names have been changed): “Insurance is denying Remicade the doctor and myself are appealing but in the meantime he is putting her on Humira shots. Her doctor has … Continue reading

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At least it’s not cancer…

I was reminded recently of the public perception of juvenile arthritis as compared to cancer. The phrase, “At least it’s not cancer,” seems to be spoken to many a JA parent in an attempt to console their fears upon learning … Continue reading

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