Tag Archives: fatigue

My own private circus

Posted on August 17, 2012 by juvenilearthritis

I am in the middle of two very busy weeks. Both kids saw Dr F on Monday. Bella got her chicken pox vaccine and Marty had his sports physical for ::gulp:: high school baseball. Tuesday was Marty’s infusion, yesterday Bella … Continue reading →

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Who is the strong one now?

Posted on August 14, 2012 by juvenilearthritis

I am sitting in the infusion room while Marty sleeps. The Actemra is going in, so we are less than 1 1/2 hours from being finished. We have already been through the questions (lots more than 20), nurse has done … Continue reading →

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Marty and Bella’s speech

Posted on June 17, 2012 by juvenilearthritis

I realized I promised someone I would post a brief history but never did it (thank you ADHD). Yesterday while cleaning off a shelf, I ran across the speech that Marty and Bella gave for the Arthritis Foundation in October … Continue reading →

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Hello Remicade

Posted on August 3, 2011 by juvenilearthritis

Monday was the first Remicade infusion.  Marty woke up nauseous, and we decided it was just nerves.  Petting TP, our dog, helped him calm down.  At the infusion center, the nurse that started his IV and drew blood for labs … Continue reading →

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All Day, Every Day

Posted on July 14, 2011 by juvenilearthritis

OK, so I mentioned earlier that Marty thinks I’m obsessed with juvenile arthritis.  Maybe he’s right.  I have this blog, my twitter account (JA_mom), my facebook JA friends group (under my real name), and lots of facebook friends who are … Continue reading →

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So many questions, so few answers

Posted on May 16, 2011 by juvenilearthritis

Marty has been feeling nauseous for two days. I thought it was a side effect from his methotrexate, which is a chemotherapy drug, but today Bella told me she has been a little nauseous. I’m glad we go to the … Continue reading →

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