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Tag Archives: wheelchair
Is your life going according to plan?
Four years ago, I would have never expected to be where I am today. I had a son who played three sports, all well, and a daughter who was a dancer and cheerleader. Marty was instantly successful at any sport he … Continue reading
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Tagged adjustment, arthritis, chronic illness, disability, family, grief, hope, hospital, ICU, immune system disorder, injections, Juvenile arthritis, loss, pain, pericardial effusion, rheumatology, steroids, surgery, wheelchair
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Overheard…
Following are a few posts in my JA parents’ board on Facebook (names have been changed): “Insurance is denying Remicade the doctor and myself are appealing but in the meantime he is putting her on Humira shots. Her doctor has … Continue reading
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Tagged Actemra, Birthday, fevers, hospital, Humira, infusion, injections, insurance, Juvenile arthritis, pain, rash, Remicade, Rilonacept, siblings, steroids, wheelchair
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Marty and Bella’s speech
I realized I promised someone I would post a brief history but never did it (thank you ADHD). Yesterday while cleaning off a shelf, I ran across the speech that Marty and Bella gave for the Arthritis Foundation in October … Continue reading
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Tagged arthritis foundation, baseball, chest pain, fatigue, history, hospital, ICU, injections, Josh Hamilton, moon face, national conference, play, school, speech, sports, steroids, wheelchair
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Things most parents take for granted
I made a list recently of things that I no longer have, but most parents don’t really appreciate. How many do you recognize in yourself? –Hearing your kid sneeze without wondering if they will end up in the hospital –Being … Continue reading
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Tagged chronic illness, injections, medications, parenting, wheelchair
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Things kids shouldn’t have to worry about
We saw the rheumatologist today and decided that Marty will start Remicade next week. Personally I wonder if they are being a little too cautious not letting him start on Friday, but I guess the doctor knows better than I … Continue reading
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Tagged baseball, chronic illness, Enbrel, infusion, Juvenile arthritis, Remicade, school, wheelchair
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