Monthly Archives: June 2011

A note of thanks

Posted on June 30, 2011 by juvenilearthritis

It’s been a roller coaster this past week with Marty’s symptoms. He has had good days and bad, mostly related to how much Enbrel is actually in his system. We had family in town for most of the last two … Continue reading →

Posted in Uncategorized | Tagged anonymity, Enbrel, family, Juvenile arthritis, pseudonym | Leave a comment

You can’t fix stupid…

Posted on June 24, 2011 by juvenilearthritis

I saw a post on another blog about juvenile arthritis that got me to thinking. There are many well-intentioned, if clueless, people that are just trying to help. Unfortunately, there are also an equal, if not greater, number of people … Continue reading →

Posted in Uncategorized | Tagged arthritis foundation, burbank, Juvenile arthritis, limbrel, Mayo Clinic, misinformation, osteoarthritis, WebMD | Leave a comment

Scary stuff

Posted on June 21, 2011 by juvenilearthritis

I just read half (only half) of the patient insert that came with the Enbrel that Marty is scheduled to start on Wednesday. It is scary stuff. There were so many warnings about lymphoma, tuberculosis, viral infections, heart and lung … Continue reading →

Posted in Uncategorized | Tagged chicken pox, Enbrel, Kineret, live vaccine, lymphoma, siblings, SOJIA, systemic juvenile arthritis, TB, tuberculosis, viral infection | Leave a comment

I hope his heart stays healthy…

Posted on June 18, 2011 by juvenilearthritis

Marty has his med change next week and the nerves are starting to set in. Not that I don’t trust the doctors or modern medicine, I just remember what happened when he first started the Kineret and then didn’t have … Continue reading →

Posted in Uncategorized | Tagged chest pain, Enbrel, ICU, Juvenile arthritis, Kineret, Kineret Foundation, migrating joint pain, pericardial effusion, persistent fever, pleural effusion | Leave a comment

Post surgery update

Posted on June 15, 2011 by juvenilearthritis

I have been remiss in posting an update after Marty’s surgery. When he woke up on Friday he wasn’t fully awake when he went into the bathroom. He slipped and hit his head on the edge of the toilet bowl. … Continue reading →

Posted in Uncategorized | Tagged black eye, concussion, doctors, double vision, Juvenile arthritis, laughing gas, nurses, surgery | Leave a comment

Thank heaven for Mom

Posted on June 9, 2011 by juvenilearthritis

I just want to go on record as saying I am so very lucky to still have my parents around, albeit not as much as I would like. Mom turned 80 this year, and we drove 7 hours one way … Continue reading →

Posted in Uncategorized | Tagged aging parents, Birthday, children, chronic illness, Enbrel, grandchildren, Juvenile arthritis, Kineret, mom, Mother, transitions | Leave a comment

T-minus 5 days

Posted on June 5, 2011 by juvenilearthritis

Marty finally admitted today he is scared about his surgery. It helped when he found out that there is a person whose sole duty is to make sure he doesn’t wake up. He is excited about being loopy from the … Continue reading →

Posted in Uncategorized | Tagged bravery, chronic illness, Juvenile arthritis, surgery | Leave a comment

Birthday ramblings

Posted on June 4, 2011 by juvenilearthritis

Yesterday was Bella’s birthday and today I feel guilty. I don’t feel like I did enough. I shouldn’t feel this way, because it was her choice to use her party money to buy a tablet pc. It was her choice … Continue reading →

Posted in Uncategorized | Tagged add, ADHD, Birthday, chronic illness, depression, self confidence | 2 Comments