Tag Archives: school

Don’t mess with mama bear

Posted on August 23, 2012 by juvenilearthritis

A friend posted recently about an email she received. Apparently the sender was questioning whether my friend’s child was truly sick, while at the same time offering advice on how to treat this “imagined” illness. Charlotte’s can of whoop a** … Continue reading →

Posted in Uncategorized | Tagged family, friends, germs, judgmental people, Juvenile arthritis, parents, school, toxic chemicals | 1 Comment

My own private circus

Posted on August 17, 2012 by juvenilearthritis

I am in the middle of two very busy weeks. Both kids saw Dr F on Monday. Bella got her chicken pox vaccine and Marty had his sports physical for ::gulp:: high school baseball. Tuesday was Marty’s infusion, yesterday Bella … Continue reading →

Posted in Uncategorized | Tagged ADHD, attendance, baseball, Birthday, chronic illness, death, family, fatigue, infusion, Juvenile arthritis, principal, school, volleyball | 1 Comment

Marty and Bella’s speech

Posted on June 17, 2012 by juvenilearthritis

I realized I promised someone I would post a brief history but never did it (thank you ADHD). Yesterday while cleaning off a shelf, I ran across the speech that Marty and Bella gave for the Arthritis Foundation in October … Continue reading →

Posted in Uncategorized | Tagged arthritis foundation, baseball, chest pain, fatigue, history, hospital, ICU, injections, Josh Hamilton, moon face, national conference, play, school, speech, sports, steroids, wheelchair | 1 Comment

And the Fun Never Ends

Posted on August 11, 2011 by juvenilearthritis

I have another crazy week coming up. Well, parts of two weeks, but you get the picture. Today I have to leave work early to meet with Marty’s principal about the inevitable absences from school when he gets sick. After … Continue reading →

Posted in Uncategorized | Tagged attendance, chronic illness, ex-husband, financial burden, immune system disorder, Juvenile arthritis, principal, school | 2 Comments

Things kids shouldn’t have to worry about

Posted on July 27, 2011 by juvenilearthritis

We saw the rheumatologist today and decided that Marty will start Remicade next week. Personally I wonder if they are being a little too cautious not letting him start on Friday, but I guess the doctor knows better than I … Continue reading →

Posted in Uncategorized | Tagged baseball, chronic illness, Enbrel, infusion, Juvenile arthritis, Remicade, school, wheelchair | 2 Comments

Time for Plan C

Posted on July 21, 2011 by juvenilearthritis

Marty goes to the rheumatologist on Tuesday. Tuesday, as in after both kids are scheduled to go to a major league baseball game with their dad on Monday. The doctor doesn’t want Marty to have any more Enbrel, but if … Continue reading →

Posted in Uncategorized | Tagged arthritis, Enbrel, immune system, Juvenile arthritis, Kineret, school | Leave a comment

I hate to say I told you so…

Posted on April 25, 2011 by juvenilearthritis

I knew Marty would not feel good today. As much as I wanted to force him to go to school he just wasn’t up to it. I let him stay home mostly because of the state achievement tests tomorrow and … Continue reading →

Posted in Uncategorized | Tagged allergies, chronic illness, Juvenile arthritis, school | Leave a comment

Good news

Posted on April 20, 2011 by juvenilearthritis

Well the principal meeting went better than expected. It was just him and me and he was very pleasant. I won’t bore you with the details but there are basically 3 critical things to get Marty to 8th grade. He … Continue reading →

Posted in Uncategorized | Tagged chronic illness, disabilities, Juvenile arthritis, principal, school | Leave a comment

Why did I open my big mouth?

Posted on April 18, 2011 by juvenilearthritis

Marty has been sick a lot because his immune system is suppressed from his arthritis medicine. I mean a lot. So much that technically he has lost credit for this school year. Of course there are provisions to deal with … Continue reading →

Posted in Uncategorized | Tagged attendance, ex-husband, Juvenile arthritis, principal, school | Leave a comment