Monthly Archives: May 2011

The high cost of juvenile arthritis

Posted on May 30, 2011 by juvenilearthritis

Here is another post borrowed from my juvenile arthritis parent group (names changed of course). This was in response to a question about the hardest part of having a child with arthritis: “For me besides watching my kids suffer and … Continue reading →

Posted in Uncategorized | Tagged , , , , , , | 2 Comments

It’s just not fair

Posted on May 27, 2011 by juvenilearthritis

I just read this post in a group I am in (the name was changed, of course): “…there is a likelihood that because of Stevie having JRA so young and all of the medications used to control it, that as … Continue reading →

Posted in Uncategorized | Tagged , , , , , | Leave a comment

Scheduled for surgery

Posted on May 27, 2011 by juvenilearthritis

Marty had an appointment at the children’s hospital yesterday to see about his chronic ingrown toenail. Long story short, he doesn’t want another local anesthetic when someone tries -again- to take care of it. He is scheduled for surgery under … Continue reading →

Posted in Uncategorized | Tagged , , , , | Leave a comment

Another sick day, without pay thank you

Posted on May 26, 2011 by juvenilearthritis

I called in sick today. Not for me, but Marty has a sore throat and his foot hurts. Well as it happens, he has an appointment to see a doctor about his foot. Not for the arthritis pain, he has … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment

Why all the secrecy?

Posted on May 24, 2011 by juvenilearthritis

So you may have been wondering (or if not you are now) why I don’t use our real names. After all, it’s not like we’re doing anything illegal or immoral. It’s not even mildly scandalous. Certainly nothing to gossip about. … Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | Leave a comment

This makes sense how, exactly?

Posted on May 20, 2011 by juvenilearthritis

Marty’s TB skin test was supposed to be read today or tomorrow. On Tuesday when they did the test, I emailed the school nurse and asked her this, “We are at the rheumatologist today, and they gave him a TB … Continue reading →

Posted in Uncategorized | Tagged , , , | Leave a comment

So here’s the plan

Posted on May 18, 2011 by juvenilearthritis

Marty and I saw the pediatric rheumatologist today. And the occupational therapist, and the physical therapist, and the radiology technician, and the phlebotomist, and the physician’s assistant, and the nurse, and a couple medical students, and a nice lady in … Continue reading →

Posted in Uncategorized | Tagged , , , , , | Leave a comment

So many questions, so few answers

Posted on May 16, 2011 by juvenilearthritis

Marty has been feeling nauseous for two days. I thought it was a side effect from his methotrexate, which is a chemotherapy drug, but today Bella told me she has been a little nauseous. I’m glad we go to the … Continue reading →

Posted in Uncategorized | Tagged , , , , , | Leave a comment

Our life, the reality show

Posted on May 12, 2011 by juvenilearthritis

I have joked with several people that our life should be a reality show. Well it happened again this morning when I took Bella to school and had to go in and see the nurse. Tuesday night she burned her … Continue reading →

Posted in Uncategorized | Tagged , , , | 1 Comment

Setback

Posted on May 7, 2011 by juvenilearthritis

Yesterday was a bust. I don’t have to be at work at a certain time, which can be good and bad. I didn’t get up in time to shower so I took the kids to school then came back home. … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment