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Tag Archives: chronic illness
My own private circus
I am in the middle of two very busy weeks. Both kids saw Dr F on Monday. Bella got her chicken pox vaccine and Marty had his sports physical for ::gulp:: high school baseball. Tuesday was Marty’s infusion, yesterday Bella … Continue reading
Posted in Uncategorized
Tagged ADHD, attendance, baseball, Birthday, chronic illness, death, family, fatigue, infusion, Juvenile arthritis, principal, school, volleyball
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Is your life going according to plan?
Four years ago, I would have never expected to be where I am today. I had a son who played three sports, all well, and a daughter who was a dancer and cheerleader. Marty was instantly successful at any sport he … Continue reading
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Tagged adjustment, arthritis, chronic illness, disability, family, grief, hope, hospital, ICU, immune system disorder, injections, Juvenile arthritis, loss, pain, pericardial effusion, rheumatology, steroids, surgery, wheelchair
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No, I’m not a doctor…
I am surprised at the amount of medical knowledge I have gained in the last 3 years. Besides knowing how to give injections, being familiar with needle guages, being able to explain the difference between autoimmune arthritis and osteoarthritis, having … Continue reading
All in the Family
You may have heard that autoimmune arthritis (as opposed to osteoarthritis) has a genetic component. In Marty’s case, his dad and I both had parents with rheumatoid arthritis (RA), so we both could be carriers. As I meet more and … Continue reading
Posted in Uncategorized
Tagged chest pain, chores, chronic illness, early diagnosis, family, financial burden, hope, hospital, immune system disorder, osteoarthritis, siblings
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I Have a Face (almost)
I decided it’s time to join the millions on Facebook to help raise awareness of juvenile arthritis. Yes, technically I’ve been there for a long time, as a regular mom with a not-so-regular life, but now Anna Banana is officially … Continue reading
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Tagged chronic illness, disability, hope, immune system disorder, Juvenile arthritis
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I’d just like to add…
I recently asked my group of Juvenile Arthritis moms what they would like the rest of the world to know. Here are a few replies: “Don’t give my child any meds if they’re at your house. That should go without … Continue reading
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Tagged arthritis, chronic illness, immune system disorder, pain
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Thankful for little things
I was shocked, as was all of America, by the tragic events last week in Aurora, Colorado. While I can’t pretend to understand how it is to be touched by such senseless violence, it does cause me to stop and … Continue reading
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Tagged Autoimmune arthritis, chronic illness, family, health, hope, pain
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Eye patches, botox, and nausea, oh my!
When you have a child with juvenile arthritis, you don’t just have to think about achy joints and, in my case, inflamed organs. Just this week on Facebook, I have seen other JA moms and teen patients posting about the … Continue reading
Things most parents take for granted
I made a list recently of things that I no longer have, but most parents don’t really appreciate. How many do you recognize in yourself? –Hearing your kid sneeze without wondering if they will end up in the hospital –Being … Continue reading
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Tagged chronic illness, injections, medications, parenting, wheelchair
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I’m baaaaack!
Yes, I have decided to start blogging again. I stopped when Marty went into a major flare (more about that later), but I have lots to share. Quick update (since I missed blogging for the whole school year): We made a … Continue reading
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Tagged Actemra, chronic illness, depression, Juvenile arthritis, Remicade, vertigo
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