Tag Archives: chronic illness

My own private circus

I am in the middle of two very busy weeks. Both kids saw Dr F on Monday. Bella got her chicken pox vaccine and Marty had his sports physical for ::gulp:: high school baseball. Tuesday was Marty’s infusion, yesterday Bella … Continue reading

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Is your life going according to plan?

Four years ago, I would have never expected to be where I am today.  I had a son who played three sports, all well, and a daughter who was a dancer and cheerleader.  Marty was instantly successful at any sport he … Continue reading

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No, I’m not a doctor…

I am surprised at the amount of medical knowledge I have gained in the last 3 years. Besides knowing how to give injections, being familiar with needle guages, being able to explain the difference between autoimmune arthritis and osteoarthritis, having … Continue reading

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All in the Family

You may have heard that autoimmune arthritis (as opposed to osteoarthritis) has a genetic component.  In Marty’s case, his dad and I both had parents with rheumatoid arthritis (RA), so we both could be carriers. As I meet more and … Continue reading

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I Have a Face (almost)

I decided it’s time to join the millions on Facebook to help raise awareness of juvenile arthritis.  Yes, technically I’ve been there for a long time, as a regular mom with a not-so-regular life, but now Anna Banana is officially … Continue reading

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I’d just like to add…

I recently asked my group of Juvenile Arthritis moms what they would like the rest of the world to know. Here are a few replies: “Don’t give my child any meds if they’re at your house. That should go without … Continue reading

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Thankful for little things

I was shocked, as was all of America, by the tragic events last week in Aurora, Colorado. While I can’t pretend to understand how it is to be touched by such senseless violence, it does cause me to stop and … Continue reading

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Eye patches, botox, and nausea, oh my!

When you have a child with juvenile arthritis, you don’t just have to think about achy joints and, in my case, inflamed organs. Just this week on Facebook, I have seen other JA moms and teen patients posting about the … Continue reading

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Things most parents take for granted

I made a list recently of things that I no longer have, but most parents don’t really appreciate. How many do you recognize in yourself? –Hearing your kid sneeze without wondering if they will end up in the hospital –Being … Continue reading

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I’m baaaaack!

Yes, I have decided to start blogging again.  I stopped when Marty went into a major flare (more about that later), but I have lots to share. Quick update (since I missed blogging for the whole school year):  We made a … Continue reading

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