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Tag Archives: injections
Is your life going according to plan?
Four years ago, I would have never expected to be where I am today. I had a son who played three sports, all well, and a daughter who was a dancer and cheerleader. Marty was instantly successful at any sport he … Continue reading
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Tagged adjustment, arthritis, chronic illness, disability, family, grief, hope, hospital, ICU, immune system disorder, injections, Juvenile arthritis, loss, pain, pericardial effusion, rheumatology, steroids, surgery, wheelchair
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Overheard…
Following are a few posts in my JA parents’ board on Facebook (names have been changed): “Insurance is denying Remicade the doctor and myself are appealing but in the meantime he is putting her on Humira shots. Her doctor has … Continue reading
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Tagged Actemra, Birthday, fevers, hospital, Humira, infusion, injections, insurance, Juvenile arthritis, pain, rash, Remicade, Rilonacept, siblings, steroids, wheelchair
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At least it’s not cancer…
I was reminded recently of the public perception of juvenile arthritis as compared to cancer. The phrase, “At least it’s not cancer,” seems to be spoken to many a JA parent in an attempt to console their fears upon learning … Continue reading
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Tagged awareness, blindness, cancer, chemotherapy, disability, disfigured, expensive, ignorance, infusions, injections, Juvenile arthritis, pain, parent, pills, remission, side effects, surgery, treatment
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Marty and Bella’s speech
I realized I promised someone I would post a brief history but never did it (thank you ADHD). Yesterday while cleaning off a shelf, I ran across the speech that Marty and Bella gave for the Arthritis Foundation in October … Continue reading
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Tagged arthritis foundation, baseball, chest pain, fatigue, history, hospital, ICU, injections, Josh Hamilton, moon face, national conference, play, school, speech, sports, steroids, wheelchair
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Things most parents take for granted
I made a list recently of things that I no longer have, but most parents don’t really appreciate. How many do you recognize in yourself? –Hearing your kid sneeze without wondering if they will end up in the hospital –Being … Continue reading
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Tagged chronic illness, injections, medications, parenting, wheelchair
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Forget about it
Apparently Marty thinks I am obsessed with juvenile arthritis. I asked him today what was the worst thing about having it and he said it was that I wouldn’t shut up about it. I know I talk about it a … Continue reading
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Tagged denial, injections, insurance, Juvenile arthritis, life changing diagnosis
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Our Life With Juvenile Arthritis 